Advancement of Hemophilia Care in the U.S.

The Advancement of Hemophilia Care in the U.S.
1.5 ACPE 1.5 ANCC Contact Hours 1.5 AMA PRA Category 1 Credit(s)
Launch Date:
February 16, 2016
Expiration Date:
The accreditation for this activity has expired.

Primary Audience:

Physicians, Nurses, Social Workers and Pharmacists caring for persons with hemophilia.

Relevant Terms:


Mary Jane Frey RN, BSN, CPN

Mary Jane Frey RN, BSN, CPN
Hemostasis/Thrombosis Coordinator
Children's Hospital of Michigan
Detroit, MI

Mary Jane Frey (also known as Missy) has been the Hemostasis/Thrombosis Coordinator at Children's Hospital of Michigan in Detroit for several years. Her duties include education and management of the coagulation staff as well as coordinating the education and care of patients with hemophilia, bleeding disorders and thrombosis. She is also very active in the local camp for bleeding disorder patients.
Ms Frey has contributed to numerous publications, abstracts and posters and has acted as a nurse reviewer for printed guides and handbooks involving both hematology and bone marrow transplants. She is also an active speaker to patients, parents, teachers and various health care members and has presented both formal and informal lectures on similar topics. Ms Frey has also been invited to be an advisor on different pharmaceutical companies advisory boards.
Ms Frey is licensed as a registered nurse in Michigan and is a certified pediatric nurse and former certified hemopoetic transplant coordinator (bone marrow transplant). She received her bachelor of science degree in nursing from the University of Detroit, Mercy, in Detroit, Michigan.

Sharon Funk PT, DPT

Sharon Funk PT, DPT
Physical Therapy Coordinator
University of Colorado Hemophilia & Thrombosis Center
Aurora, CO

Sharon Funk, PT, DPT, is the physical therapy coordinator at the University of Colorado Denver Hemophilia and Thrombosis Center. She has provided physical therapy for persons with bleeding disorders for over 36 years. She developed the joint evaluation tool for the Joint Outcome Study; a prospective, randomized study comparing the joint outcomes of children with hemophilia on primary prophylaxis versus those receiving on-demand therapy. For the past 14 years she has been a member of the Expert Physical Therapy Working Group of the Hemophilia International Prophylaxis Study Group (IPSG). Through this group she has been involved in the development, and reliability and validity testing of the Hemophilia Joint Health Score (HJHS), an impairment measure for evaluating joint disease in hemophilia. She is a member of the American Physical Therapy Association, the National Hemophilia Foundation and the World Federation of Hemophilia Musculoskeletal Committee. In 1997 she was the recipient of the first NHF Physical Therapist of the Year Award.

Susan Cutter, LCSW, MSW, MPA

Susan Cutter, LCSW, MSW, MPA
Assistant Director and Social Worker
Penn Hemophilia and Thrombosis Program
Penn Medicine (University of Pennsylvania Health System)
Philadelphia, PA

Susan Cutter is a licensed clinical social worker with a Master’s Degree in Social Work, a Master’s Degree in Public Administration and a Certificate in Psychodynamic Psychotherapy. Ms. Cutter is the Assistant Director & Social Worker of the Penn Hemophilia and Thrombosis Center. Working as a social worker with the hemophilia population since 1989, she provides a full complement of social work services to individuals and families with bleeding disorders. She participates in hemophilia outreach efforts, including providing social work services to adolescents in transition in an underserved area. 
Ms. Cutter has been a professional trainer in the bleeding disorder community in areas such as strengthening patient/provider communications, team building, and conflict resolution. She has been involved in developing a wide range of educational programs, nationally and internationally, focusing on psychosocial issues for patients with hemophilia and their families, the role of social worker on the hemophilia care team; and managing intra- and interdisciplinary collaboration.
Ms. Cutter received the “Outstanding Social Work Award” in 1995 from the National Hemophilia Foundation.

Amy D. Shapiro, MD

Amy D. Shapiro, MD
Medical Director
Indiana Hemophilia & Thrombosis Center
Indianapolis, IN

Amy Shapiro, MD, is Medical Director of the Indiana Hemophilia and Thrombosis Center in Indianapolis and Adjunct Professor of Pediatrics at Michigan State University in East Lansing. After receiving her medical training at New York University School of Medicine in New York City, Dr. Shapiro completed her pediatric internship, residency, and fellowship in pediatric hematology/oncology at the University of Colorado Health Sciences Center in Denver.
Author or co-author of more than 200 journal articles, abstracts, and textbook chapters, Dr. Shapiro is active in improving treatment for people with bleeding disorders. She has been appointed to the National Hemophilia Foundation’s Medical and Scientific Advisory Council and has served on several boards for National Institutes of Health in Data Safety Monitoring and Clinical Trial Review. She has served as Co-Chairman of the Board of Directors for the American Thrombosis and Hemostasis Network and remains active on various ATHN committees.
Dr. Shapiro has been honored as the National Hemophilia Foundation Physician of the Year Award as well as the Distinguished Hoosier Award in Indiana. She is a member of numerous professional societies including the Hemostasis & Thrombosis Research Society, the International Society on Thrombosis and Haemostasis, the American Society of Hematology, the National Hemophilia Foundation, and the World Federation of Haemophilia.
1. Review the advances and diagnosis and treatment advances for the care of people with hemophilia from the past to the future.
2. Discuss the expansion of treatment options that continues to improve the life expectancy and the quality of life for people with hemophilia.
3. Describe the advantages of supportive therapy and comprehensive care for people with hemophilia.
4. Explain how a multidisciplinary approach to research and the care of people with bleeding disorders has improved outcomes.

If you have questions about this CME activity, please contact AKH Inc. at or SolutionSight Inc. at
CME credit provided by AKH Inc., Advancing Knowledge in Healthcare.
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of AKH Inc., Advancing Knowledge in Healthcare and SolutionSight, Inc. AKH Inc., Advancing Knowledge in Healthcare is accredited by the ACCME to provide continuing medical education for physicians.
AKH Inc., Advancing Knowledge in Healthcare designates this enduring activity for a maximum of 1.5 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Physician Assistants
NCCPA accepts AMA PRA Category 1 Credit(s)TM from organizations accredited by ACCME.
CE credit provided by SolutionSight, Inc.
SolutionSight, Inc. is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.
This activity is awarded 1.5 contact hours.

SolutionSight, Inc. is accredited by the Accreditation Council for Pharmacy Education as a provider of continuing pharmacy education. Solutionsight Inc. approves this knowledge-based activity for 1.5 contact hours (0.15 CEUs).
UAN 0450-9999-16-024-H01-P. Initial Release Date: February 16, 2016.
Activity is jointly provided by AKH Inc., Advancing Knowledge in Healthcare and SolutionSight, Inc.

Mary Jane Frey has no relevant financial relationships to disclose.
Susan Cutter discloses the following relevant financial relationships:
Honorarium - Novo Nordisk
Sharon Funk discloses the following relevant financial relationships:
Consultant and Contracted Research - Bayer Healthcare Pharmaceuticals
Amy Shapiro discloses the following relevant financial relationships:
Advisory Board - Baxalta, Biogen IDEC, Noro Nordisk
Consultant - Baxalta, Biogen IDEC, Kedrion Biopharma, Novo Nordisk, ProMetric LifeScience
Contracted Research - Baxalta, Bayer Healthcare Pharmaceuticals, Biogen IDEC, CSL Behring, Daiichi Sankyo, Kedrion Biopharma, Octopharma, OPKO, ProMetic LifeScience, PTC Therapeutics, Selexys
Speakers Bureau - Biogen IDEC
Contributor - UpToDate, Inc.
Dorothy Caputo, MA, BSN, RN - Director of Accreditations
has no relevant financial relationships to disclose.
SolutionSight Inc. Staff and Planners have no relevant financial relationships to disclose.
AKH Inc. Staff and Planners no relevant financial relationships to disclose.
Commercial Support
This activity is supported by an educational grant from Baxalta, Inc.
It is the policy of AKH Inc. and SolutionSight, Inc. to ensure independence, balance, objectivity, scientific rigor, and integrity in all of its continuing education activities. The author must disclose to the participants any significant relationships with commercial interests whose products or devices may be mentioned in the activity or with the commercial supporter of this continuing education activity. Identified conflicts of interest are resolved by AKH prior to accreditation of the activity and may include any of or combination of the following: attestation to non-commercial content; notification of independent and certified CME/CE expectations; referral to National Author Initiative training; restriction of topic area or content; restriction to discussion of science only; amendment of content to eliminate discussion of device or technique; use of other author for discussion of recommendations; independent review against criteria ensuring evidence support recommendation; moderator review; and peer review. 
Disclosure of Unlabeled Use and Investigational Product
This educational activity may include discussion of uses of agents that are investigational and/or unapproved by the FDA. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.
This course is designed solely to provide the healthcare professional with information to assist in his/her practice and professional development and is not to be considered a diagnostic tool to replace professional advice or treatment. The course serves as a general guide to the healthcare professional, and therefore, cannot be considered as giving legal, nursing, medical, or other professional advice in specific cases. AKH Inc. specifically disclaim responsibility for any adverse consequences resulting directly or indirectly from information in the course, for undetected error, or through participant's misunderstanding of the content
To obtain credit, a score of 70% or better on the post-test is required. This activity is offered at no cost to participants. Please proceed with the activity until you have successfully completed this program, answered all test questions, completed the post-test and evaluation, and have received a digital copy of your credit certificate. You must participate in the entire activity to receive credit.

Supported Browsers:
Internet Explorer 9.0+ for Windows 2003, Vista, XP, Windows 7, Windows 8.1
Google Chrome 28.0+ for Windows, Mac OS, or Linux
Mozilla Firefox 23.0+ for Windows, Mac OS, or Linux
Safari 6.0+ for Mac OSX 10.7 and above